Wednesday, November 21, 2012

Visit to the Endorcrinologist

Just to keep everyone in the loop...

After my last episode I went crazy on mission
figure out mystery disease.
I don't ever want to have another episode again and I definitely don't want to have any more while I'm pregnant. 
I'm honestly not sure if the baby could make it through another one.

Anyways, after being sent back to my primary doctor again (which was so frustrating) I was referred to an Endocrinologist. 
It was totally a God story how they even got me to be seen so quickly but I went for an appointment last Wednesday.
And the scoop is... 
they still think I have Carcinoid Syndrome.
It's pretty much the only thing that could explain all of my symptoms. 
However all the tests I have done to detect the Carcinoid tumors (that cause Carcinoid syndrome) have come back negative. 
The Endocrinologist thinks since the tumors are so tiny they are just hiding and being missed. 
He wants me to re do the crazy radioactive Ocreotide scan BUT I can't do it, or any other test for that matter, until after I have the baby. 
So in the meantime we just have to wait and pray that I don't have any more episodes before the baby comes or if I do that they are very mild.
So that's where we are.
Kind of back at square one with another long road ahead of us.

But again, God is good and in control.
This is just another thing we give over to Him
and wait and trust that even when no one knows what's going on He does.
Even though we don't get it
this is all a part of His perfect plan.
And in the midst of the uncertainty there is comfort in that.

2 comments:

Erika said...

Yes,that is true!God is in coontrol. May He bless you and your family!

Christi Ellis said...

The Lord is a stronghold for the oppressed, a stronghold in times of trouble. And those who know your name put their trust in you. For you, o Lord, have not foresaken those who seek you. Psalms 9: 9-10.
Praying all goes well the remainder of your pregnancy!